“Perhaps our eyes need to be washed by our tears once in a while, so that we can see Life with a clearer view again”. ~ Alex Tan

When my son Donnie was Diagnosed with a Rare Genetic Disorder, Rubinstein- Taybi Syndrome (RTS). I indeed shed many tears. I spent hours, days, months, wondering why him...why me? In the beginning... it was very difficult coping. I struggled with grief which led to depression and my inevitable weight gain, yes... obesity. With the loving support of my husband and family they helped me find my way back, back to the woman I knew I had to be.

My passion ignited as a Spokesperson for the National Organization for Rare Disorders (NORD) ® . I have been recognized on the floor of Congress for my efforts with RTS and I travel extensively in this role, promoting awareness everywhere for rare disorders and the need for ongoing research. One day there will be a cure for many.

Life is seen with a clearer view through my eyes now. The tears have dried. I am a 46 year old woman who is purpose driven. I stood through adversity and overcame.

I am:

~MORE beautiful~MORE confident~MORE joyous~MORE patient~MORE... than ever before!